Nebraska Pasta Feed 2014

Our First Pasta feed!!! We had approxinately 600 people show up and were generous in their donations!! As much as we wished we could have kept all of it for Ryan, we had to make a decision, we knew that the best way to see that our son had a future, was to donate one-third of was was raised to Help Extinguish Hunter Syndrome, which in turn gave 100% of that to Gene Therapy, we knew that even though we physically didn't have the money, in hand, it was still going towards Ryan's future. We then traveled to Minnisota twice and recieved two rounds of Ryan's medication with the remaining money. We feel we are so bless and overwhelmed to have such a supportive community.
 

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