"Without our children, tomorrow wouldn't be worth the wait, and yesterday wouldn't be worth the memory."
-Author Unknown
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Here at Ryan Our Lion, we believe that knowledge is power - the more you know, the more you can do! With that being said, we welcome you to contact us with any questions, comments, or concerns you may have. Don't forget, we are on Facebook & Twitter too! We love sharing what we know and enjoy getting feedback on how to improve our effots towards finding a cure. Contact information is listed below, feel free to drop us a line - even if only to say "hello!"
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Becoming a ROL volunteer gives you a hands-on experience in changing the lives of children affected by Hunter Syndrome. By donating your time, you help make fundraising events possible; giving us a chance to get another step closer to the cure! Please fill out the form below to receive more information on how you can become a Ryan Our Lion volunteer today!
Ryan our Lion is always looking for sponsorship partners to help make more possible as we continue to work towards funding for the cure. If you or someone you know is interested in recieving more information on the current sponsorhip opportunities available, please submit your information in the form below and a member of Team Ryan will be in contact with you soon.
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No question is considered too big or too small - if you have a question, comment, concern, or suggestion for Ryan Our Lion please feel free to submit it by using the contact form included below. We believe that when we hold the necessary knowledge, anything is possible! Ask away and a ROL member will be in touch with you soon.
If you would like to schedule an interview to learn more about Ryan's story or are interested in helping us spread awareness on a larger scale through media coverage, please contact us through the inquiry form provided below. We appreciate your help to increase awareness about this life-threatening disease and look forward to hearing from you.
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Click below to find more information about Hunter Syndrome &
Gene Therapy: